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Showing posts with the label consent

My take on: Your digital identity has three layers, and you can only protect one of them by Katarzyna Szymielewicz

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Source https://qz.com/1525661/your-digital-identity-has-three-layers-and-you-can-only-protect-one-of-them/amp/ My version of the concept is here  from 2009 I would add to this excellent work by  Katarzyna Szymielewicz  that it is not about me and my data and what analysis of my data tells anyone.  It is about all data, and once anything leaves my head it is shared.  There once was a (useful) set of boundaries and limits to the capability that sharing of data could produce; now there is no boundary and no limit. Get the full version  here

Consent - fabulous resource H2020 project from the EU

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https://i-consentproject.eu/results/ D1.1 Report on guidelines, standards and initiatives for improving informed consent in the healthcare context. D1.2 Report on gender and age-related issues associated with the acquisition of informed consent. D1.3 Ethical and legal review of the informed consent. D1.4 Ethical issues concerning informed consent in translational/clinical research and vaccination. D1.5 Legal issues concerning informed consent in translational/clinical research and vaccination. D1.6 Patient involvement in vaccine research. D1.7 Socio-cultural, psychological and behavioural perspectives towards informed consent process.

Bias and more bias; leads to informed consent being a broken ideal

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Our personal worldview is based on experience but that experience has a bias; the way we make sense of things produces bias ( The Mind is Flat ) and in the end we have no idea just how biased we are in our own opinions, delivery, views or ideas.  However a joy of the Freedom is Speech is that we are entitled to have a biased opinion and express it. Human brains are wired to make all kinds of mental mistakes which can impact our ability to make sense of what our senses are telling us. In total, there are 188 cognitive biases that mess with how we process data, think critically, and perceive reality.   This is the big picture at the end. The School of Thought , a non-profit dedicated to spreading critical thinking has the construct below to help us, it puts the most common ideas in a simple form. Why is this important : a big idea in GDPR and other consumer protection rights /ideas is that of informed consent. The idea falls down at many levels as a complex consent therefore need